Portsmouth charity launches new pack to help parents of children with Down syndrome – The News

NEW parents and medical professionals will benefit from a pack talking about Down syndrome.

Portsmouth Down Syndrome Association launched their Parent Pack yesterday at Queen Alexandra Hospital.

It will give advice to families of children with Down syndrome and signpost them to the charity which offers support throughout the city and surrounding areas.

The pack contains case studies of young people with the condition and what the charity can do to help.

It also has information for doctors and nurses when telling parents about the diagnosis and the best terminology to use.

Staff and volunteers from the Portsmouth Down Syndrome Association spent the day at QA Hospital to promote the pack and mark the launch.

Rachael Ross, chairman, said: ‘Studies show health professionals delivering a diagnosis have a unique opportunity to positively shape the early phase of a family’s journey.

‘But we hear from so many of our families that this can be a negative experience for them.

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