‘It’s tearing our family apart’ – teen with cerebral palsy can no longer stay with dad thanks to this NHS rule – Lincolnshire Live

A father from Lincoln is at his wits’ end because he can’t get the specialist equipment he needs to support his son who suffers from cerebral palsy.

Dane Rose can’t walk, dress or feed himself and needs round the clock care because of the condition, which affects both his arms and legs.

The 17-year-old also has reflux and easily chokes if he’s not in the right position and is fed through a tube in his tummy.

And he needs a portable hoist so he can be safely moved around the house and into bed, especially as he is now too big for dad, Justin, to lift without causing them both pain.

Dane has a hospital-style adjustable bed to support him safely at an angle at his mother’s house – but under NHS rules, dad Justin can’t get the equipment he needs to take care of him in the house he lives in.

There is a ceiling track hoist and bed at his mum’s home, but policy dictates duplicates are not funded, meaning he can longer stay at his dad’s house.

Dad Justin said: “It’s heartbreaking for us all.

“Dane wants to stay over at my house, just like his nine-year-old sister Torey does, which would also give his mum respite from caring for him round the clock.

“Dane has painful hip dislocations which have already resulted in extensive surgeries – and more are planned.

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