Fundraising challenges and events are all being staged to support five-year-old William Eames, who was diagnosed with Duchenne Muscular Dystrophy (DMD) when he was just three.
DMD is a fatal genetic disorder which causes progressive muscle weakening, meaning William struggles to get around as well as other children.
He has just received his first wheelchair and will become more and more dependent on it in the coming years.
It is likely to be his only way of getting around from the age of about 12.
The vast majority of children affected by DMD are boys.
It is an incurable disease which also affects the muscles around the heart and it is rare for those who develop it to live beyond their twenties.
William’s family, having spent two years raising funds and awareness for the charity Action Duchenne, are now accepting donations so they can adapt their Codicote home to give William the best possible quality of life.
Friends and family have swung into action, organising a charity abseil down the Orbital in May as well as a series of other fundraising meals and events.
William’s family have sourced a large amount of the funding needed for the adaptations to their home but need a further £50,000 so that building can start, and be completed in time to keep up with William’s needs.
Adaptations include widening door frames and creating a separate front door.
William’s parents, Jo and Matt, have lived in Codicote for the past 10 years and William goes to the village primary school.
They say they have been “overwhelmed” by the response from everyone wanting to support them.