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Co Antrim six-year-old inspires new Spina Bifida and hydrocephalus charity LoveHope&Faith – Belfast Live

Meet the 6-year-old Co Antrim girl so determined not to let Spina Bifida or hydrocephalus hold her back that her parents set up a charity in her name.

Avah Faith McGinty was born with the lifelong conditions, which mean she will always need help getting around and suffers from a build up of fluid in her brain that can cause excruciating headaches.

But last year the Gracehill Primary School pupil showed true grit when she raised almost £2,000 walking 25m on a frame at the end of the Belfast half marathon.

Avah’s dad Darren said the family are now hoping to help others with the same conditions by providing equipment such as walking frames through their new charity LoveHope&Faith .

The 37-year-old told Belfast Live: “My daughter has Spina Bifida and hydrocephalus and she’s six-years-old.

“When Avah was younger we found we had difficulties with the NHS supplying equipment and stuff like parallel bars to help her progress her walking and get up on her feet. So we just took the initiative to try and start something up.

“We have quite a good family and friend base here in Ballymena and everybody came behind us and said ‘give it a go’.

“The reason why we called the charity LoveHope&Faith is because Avah’s second name is Faith.”

LoveHope&Faith recently had their registration confirmed by the Charity Commission Northern Ireland.

And Darren said they already have plans for a Avah’s next half marathon challenge.

He added: “It’s all go at the minute really.

“Our main aims would be to supply equipment and be there for the kids when they go into hospital.

Read more at: https://www.belfastlive.co.uk/news/co-antrim-six-year-old-14859772

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