Spina Bifida

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UCLH offers fetal surgery for spina bifida for the first time in the UK – University College London Hospitals

A team from University College London Hospitals (UCLH), UCL and Great Ormond Street Hospital (GOSH) has operated…

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Doctors operate on unborn babies with spina bifida for the first time in Britain – which could save mothers travelling abroad for the treatment – Daily Mail

Babies with spina bifida have had their spinal cords repaired in the womb in the first operations…

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5-year-old with spina bifida gets custom Halloween costume that’s functional with his wheelchair – CBS News

Five-year-old Blake Mompher from Prospect, Ohio, was born with spina bifida and uses a wheelchair to get…

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Doctors in Milan successfully treat spina bifida in unborn baby – The Local Italy

In the first operation of its kind in Europe, the San Raffaele hospital in Milan has used…

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Donegal man speaks about living withs spina bifida – Donegal Now

A Donegal man has spoken about living with spina bifida. Frank Larkin, from Letterkenny, reveals details of his…

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All bread in the UK is soon to contain folic acid – why? – Metro

The idea of putting folic acid into flour, and therefore into bread, is something that ministers have…

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Baby with spina bifida who had surgery before birth now able to walk – Lifesite

Doctors told an expectant mom that her son had spina bifida and might never walk. But thanks…

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Disabled teenager who met Harry and Meghan at WellChild charity do was barred from returning to school to sit her A-levels ‘for having too much time off SICK’ – Daily Mail

A disabled schoolgirl who met Prince Harry and Meghan Markle after being honoured for battling two incurable…

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Kirkintilloch woman who helped pave the way for medical advances in spina bifida is remembered – Kirkintilloch Herald

Generous fundraisers have collected thousands of pounds for a specialist charity which supports those affected by spina…

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How stairs made of cardboard are helping young adults with spina bifida (video) – Syracuse

Caleb Leonard is like most kids his age. The 15-year-old student at Chittenango High School was excited…

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Meet the 2-Year-Old Kansas Boy with Spina Bifida Who Has Stolen the Internet’s Heart! – PEOPLE.com

Two-year-old Roman Dinkel has reached typical toddler milestones, such as talking, playing with toys and interacting with…

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Plucky two-year-old with spina bifida spreads joy to MILLIONS after viral clip shows him using his crutches – while proudly sharing his achievements with his dog – Daily Mail

A two-year-old boy who was born with spina bifida has defied the odds by learning how to…

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Toddler with spina bifida warms hearts after showing his dog he can walk – ABC News

An adorable little boy is spreading smiles across the globe after a video of him celebrating his…

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Mother blasts lack of apology after daughter with spina bifida treated by school staff wearing face masks – thejournal.ie

THE MOTHER OF a young girl living with spina bifida has slammed the girl’s former school for…

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Watch: Campaign calls for equality for those living with spina bifida and hydrocephalus – Irish Examiner

A powerful campaign was launched today highlighting the need for equality for those living with spina bifida…

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Co Antrim six-year-old inspires new Spina Bifida and hydrocephalus charity LoveHope&Faith – Belfast Live

Meet the 6-year-old Co Antrim girl so determined not to let Spina Bifida or hydrocephalus hold her…

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‘Giving babies with spina bifida a chance’ – BBC News

One in every 1,000 pregnancies in Britain is affected by a spine or brain defect such as…

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Spina Bifida, hydrocephalus patients run out of drugs – New Vision

Parents of children born with spina Bifida are worried over the current stock out of oxybutynin drugs…

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Meet the endurance junkies who thrive on taking it up a notch – Irish Examiner

It’s one thing to be fit and active — but some people take it to extremes. Karen…

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Funds appeal after surgery on unborn baby in Germany – BBC News

A couple have started a fundraising campaign to pay for surgery carried out abroad on their unborn…

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Yate couple in Germany for surgery on unborn baby – Gazette Series

A COUPLE from Yate have travelled to Germany for pioneering surgery on their unborn baby. Georgia Axford, 19,…

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West Belfast girl with spina bifida is doing something amazing for others – Belfast Live

A West Belfast girl with spina bifida is doing something amazing for others. Codie Hawkins, eight, has her…

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Doctors told Plymouth mum her daughter may never walk – now she’s defying all odds – Plymouth Herald

When Jo Heale was pregnant with her daughter Olivia, she was told her baby girl would be…

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Spina Bifida sufferer from Newport who completed 10K is ‘an inspiration’ – South Wales Argus

A NEWPORT student with spina bifida who completed the inaugural ABP Newport Wales 10K has been described…

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Aberdeen miracle boy Dexson defies doctors’ dire predictions – Press and Journal

Scans showed at 22 weeks the tot was not only suffering from spina bifida, but also had…

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Toddler Kaidence Tate with rare form of spina bifida named a ‘superstar’ – Belfast Telegraph

A little Co Antrim girl born with a rare form of spina bifida has defied the odds…

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New Surgery Might Help Babies with Spina Bifida Walk – WMFE

A surgery being performed at Arnold Palmer Hospital for Children might improve outcomes in infants born with…

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Boy born bent in half now models for Tommy Hilfiger while using a wheelchair – Metro

Colton Robinson was born bent in half as a result of one of the most severe spina…

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‘We never had any problems with our daughter’s wheelchair on the NHS. Then a private company took over’ – iNews

The parents of an 11-year-old wheelchair user have heavily criticised a private healthcare firm for failing to…

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Charity abseilers rapel down 160ft Aberdeen tower to raise £20,000 for spina bifida cause – Aberdeen Evening Express

More than 100 daredevils abseiled down a prominent Aberdeen building for charity. The group rappelled from the…

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Fleetwood native helps organize benefit concert for boy, 6, with spina bifida – Boyertown Berk Montgomery Newspapers

The National Student Speech Language and Hearing Association Chapter at Misericordia University is holding its fourth annual…

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This Photo Helped A Girl With Spina Bifida See The Beauty Of Her Scar – HuffPost UK

Emilia had never properly seen the scar on her back, the result of an operation she underwent…

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West Belfast teen with severe condition has vital op cancelled for SECOND time – Belfast Live

A family has been left distraught after a crucial operation to correct a teen’s crippling condition was…

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A Newport woman with spina bifida is set to push herself around the Newport 10k – South Wales Argus

A NEWPORT woman with spina bifida is planning to take part in the upcoming ABP Newport Wales…

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Red Bank restaurant owner gives disabled teen surprise custom car – Asbury Park Press

Kaitlin Clutter was born with spina bifida. Her spinal cord had failed to develop properly. “Doctors told my…

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Tributes paid to India disability activist Javed Abidi – BBC News

Tributes have been paid to Javed Abidi, the prominent Indian disability activist who has died, aged 53. Mr…

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International Spina Bifida experts shapes future research, shares insights for practical care – Medical Xpress

Spina bifida (myelomeningocele), a serious and complex spinal cord birth defect, has an estimated prevalence of slightly…

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Bristol woman who was first in world to compete in the same Paralympic Games as her husband dies – Bristol Post

A disabled woman from Bristol who was the first in the world to compete in the same…

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FIU Student Christine Ballart Is Showing Spina Bifida Who’s Boss – Study Breaks

Every college student struggles, but so few actually have a disability that makes their daily life harder…

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‘The DWP says I have to go to the Jobcentre – but I’ll never be able to work’ – Stoke Sentinel

Disabled Tony Leonard has been told he must attend Jobcentre interviews – despite the fact he will…

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Bangor mum calls for more disabled changing facilities after difficulties with son – Belfast Live

A Co Down mum forced to change her son who has Spina Bifida on public bathroom floors…

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Mental and physical health programme for young people rolled out – BBC News

A mental health project for young people with long-term physical conditions is being rolled out across Scotland. Following…

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Make folic acid compulsory in flour to prevent birth defects, ministers urged – Dorset Echo

A “statistical error” that resulted in an upper limit being set for daily folic acid intake may…

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Baby Who Had Experimental Surgery to Fix Spina Bifida While Still in the Womb is Born Healthy – LifeNews.com

Baby Royer’s success story brings hope to families whose unborn babies have been diagnosed with spina bifida. Royer…

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HS robotics team makes car for 2yo with Spina Bifida – KCRG

Robotics teams from high schools around the country often compete to see who can build the best bot. But a couple Michigan high…

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Newborns with spina bifida have sleep-disordered breathing in first days of life, study finds – News-Medical.net

New parents often hear about how important sleep is for their babies’ development — but some newborns may have more serious sleep challenges…

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Greece girl thrives – and dances – in the face of spina bifida – Rochester Democrat and Chronicle

Nine-year-old Giana Bisnett scooted into a Webster dance studio with razor-like focus last week. Moments later, she moved through the group of more than…

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Sicilians take aim at oil ‘monster’ they blame for children’s birth defects – The Guardian

Sicilian Town Hit by Health Crisis For Decades Everyone in the Sicilian town of Gela knows someone who has been hit by the health…

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Surgeons fixed this baby’s spina bifida while she was still in the WOMB – saving her from a lifetime of disability and premature death – Daily Mail

A surgery performed while she was in her mother’s womb saved three-month-old Eiko Son from a lifetime of impairments from spina bifida. The team…

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Spina Bifida can’t slow down a girl on the run – STLtoday.com

Mia Balella, 10, loves sports, any kind of sports. The fact that she has spina bifida has not slowed her down. Last year she…

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