Muscular Dystrophy

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A researcher at BU works on a new drug for muscular dystrophy – Binghamton Homepage

A researcher at Binghamton University’s Pharmacy School is working on a new drug that could significantly prolong…

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Muscular dystrophy: ‘Try a bit harder to walk, daddy’ – BBC News

A man with muscular dystrophy has called for more psychological support for both him and his family. Andrew…

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Here’s How I Decorated My Wheelchair This Christmas – Muscular Dystrophy News

In my family, almost every holiday deserves decorations. Even Valentine’s Day is celebrated, with heart stickers on…

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Home-based pulmonary function monitoring for teens with Duchenne muscular dystrophy – News Medical

Heart and lung complications are responsible for much of the morbidity and mortality associated with Duchenne muscular…

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UMN researchers give new insight to muscular dystrophy patients – EurekAlert

New research by University of Minnesota scientists has revealed the three-dimensional structure of the DUX4 protein, which…

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Coping with Duchenne: Parents Swap Stories at ‘Futures’ Conference – Muscular Dystrophy News

Until her son, Will, was diagnosed with Duchenne muscular dystrophy as a 7-year-old, speech pathologist Tiffany Cook…

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Muscular Dystrophy UK to ramp up digital campaigning – Charity Digital News

Muscular Dystrophy UK is looking to expand its digital campaigning, including establishing an online campaigning network. The charity…

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Small Ways to Get in the Holiday Spirit – Muscular Dystrophy News

The holidays can be a tumultuous time. Advertisements would have us believe that the ups and downs…

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Living with Muscular Dystrophy – Muscular Dystrophy News

Muscular dystrophy refers to a group of genetic disorders associated with the progressive loss of muscle tissue…

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Muscular Dystrophy UK partnership to improve journeys for disabled road users – Open Access Government

A new partnership with charity Muscular Dystrophy UK (MDUK) will bring Changing Places accessible toilets to the…

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My Introduction to Medical Marijuana – Muscular Dystrophy News

Marijuana use in the United States dates back to the 1600s. Before being introduced as a recreational…

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Beach wheelchair helps 10-year-old get back to his ‘happy place’ – Stuff

Ten-year-old Thomas Morrison loves the water, but, until recently, going to the beach hasn’t been an option. Thomas…

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Here’s How I Host Parties While Still Caring for My Body – Muscular Dystrophy News

These days it’s more difficult than ever to hang out with my friends. They’re all working hard…

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Brothers Max and Jack go into business for muscular dystrophy research – The Advocate

Each week Max and Jack Butler create colourful artworks using a straw and food colouring as therapy…

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Wheelchair-accessible Halloween Happenings – Muscular Dystrophy News

Halloween pulls at my heartstrings. I love it so much that even Christmas comes in second. Maybe…

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The Simple Act of Opening a Door for Someone – Muscular Dystrophy News

Society is an odd concept if you really think about it. It controls us like puppets on…

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Promising new therapy spares muscle loss in Duchenne muscular dystrophy – Medical Xpress

A promising therapy for Duchenne muscular dystrophy (DMD) developed by University at Buffalo researchers is moving closer…

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A Girl’s Best Friend: Thoughts on Mobility Assistance Dogs – Muscular Dystrophy News

One of the best days of my life was when my family and I brought home my…

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A clothing line for women with chronic illnesses? Why 1 woman made it happen – Today.com

Keisha Greaves has always had a passion for fashion. So when she was diagnosed with limb-girdle muscular…

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Finding Doctors Who Understand Your Disease – Muscular Dystrophy News

In life, there are good and bad versions of everything. When it comes to doctors, some get…

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Gene-editing hope for muscular dystrophy – BBC News

Scientists have for the first time used gene-editing to treat Duchenne muscular dystrophy in a large mammal,…

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Boy With Muscular Dystrophy Gets Custom Star Wars-Inspired Wheelchair At StocktonCon – CBS Sacramento

It was a dream come true for a Stockton boy with a love for Star Wars. Linda…

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Seeing Both Sides of the Plastic Straw Controversy – Muscular Dystrophy News

A few years ago, if you had asked me what it means to be eco-friendly, I would…

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Families ‘heartbroken’ as rare illness drug rejected for NHS use – Shropshire Star

A charity has condemned a decision by health officials to reject a drug to treat a rare…

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Muscular Dystrophy UK cuts ties with Christine Hamilton over KKK tweet – Third Sector

The charity dropped its ambassador of five years over a tweet comparing the burka to outfits worn…

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OCD in Duchenne Muscular Dystrophy Features Distinct Phenotype, Associated Symptoms – Neurology Advisor

Obsessive compulsive disorder (OCD) is a somewhat prevalent psychiatric disorder in patients with Duchenne and Becker muscular…

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Family asked to prove son’s disability before boarding Jet2 flight – The Guardian

The family of a 10-year-old boy were asked to prove he had a disability before they were…

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Parenting as a DMD patient – pharmaphorum

Parenting as a DMD patient The sleepless nights and steep learning curve that will be familiar to any…

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Duchenne muscular dystrophy gene therapy trial put on hold – Genetic Literacy Project

Sarepta Therapeutics’ clinical trial for a gene therapy to treat Duchenne muscular dystrophy has been paused by…

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In Greece, One Family’s Struggle with Duchenne – Muscular Dystrophy News

In the mythology of ancient Greece, Hermes was the god of boundaries and transitions, with the ability…

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A new hope for muscular dystrophy patients – The Health Site

As per the joint study by InBody and Ipsos, 71 per cent of Indians suffer from poor…

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The amazing creations of a young artist with muscular dystrophy (Video) – Aleteia EN

At just 10 years old, this little girl has already had her work displayed in exhibitions. When she…

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How BBC reporter with muscular dystrophy helped Asos create a jumpsuit for people in a wheelchair – iNews

Fashion retailer Asos and sports reporter Chloe Ball-Hopkins, who has muscular dystrophy, have collaborated to make a…

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A dietary supplement increases muscle-force production by 50% in the Duchenne muscular dystrophy mouse model – Université Laval

A dietary supplement derived from glucose increases muscle-force production in the Duchenne muscular dystrophy (DMD) mouse model…

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Interacting with Kids Who’ve Never Been Around a Wheelchair – Muscular Dystrophy News

People can be downright rude when it comes to being around someone who’s different to them. You…

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What it’s like to find out your 6-year-old has incurable muscular dystrophy – Cambridge News

The parents of a little boy with a terminal genetic disorder are determined to help him live…

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Learning to Embrace Relapse with Muscular Dystrophy – Muscular Dystrophy News

Just eight years ago, a four-hour trip to Disneyland would barely touch me. I’d go on a…

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Dating with a Disability (Part 1) – Muscular Dystrophy News

Part one of a series. Last summer, I was looking through some BioNews Services articles when I came…

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Young man with Duchenne Muscular Dystrophy shares story of hope – WLWT Cincinnati

Anyone who has battled an illness, or went through a tough time in their life knows how…

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Upgrading the toolbox for Duchenne muscular dystrophy research with a new rabbit model – Science Daily

Scientists rely on the use of animal models to improve our understanding of lethal muscle-wasting disease Duchenne…

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Firefighters honored for campaign to cure muscular dystrophy – WMC Action News 5

The Memphis Fire Department’s Fill the Boot campaign kicks off in a few weeks. Monday, the city was…

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Charity runner to take on London Marathon for muscular dystrophy – Scottish Daily Record

A charity runner is taking on his most gruelling challenge yet to once again raise money for…

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Muscular Dystrophy Won’t Eclipse the Blessings of Everyday Life – Muscular Dystrophy News

Chronic illness can dramatically alter life perspective. If there’s anything I’ve learned from having mitochondrial myopathy, it’s…

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Breaking the Stigma of Asking for Help – Muscular Dystrophy News

A lot of people think that asking for help is a piece of cake. A walk in…

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Muscular Dystrophy wants Spinraza to be made available on the NHS – The National

DRUG bosses must approve a “lifeline” drug for use on the NHS to stop patients losing the…

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Genetic Compensation Mechanism Could Aid in Treatment of Muscle Disorders, Study Suggests – Muscular Dystrophy News

A genetic compensation mechanism discovered in zebra fish could have implications in the treatment of muscle diseases,…

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Codicote villagers rally round to support five-year-old with genetic disease – Welwyn Hatfield Times

Fundraising challenges and events are all being staged to support five-year-old William Eames, who was diagnosed with…

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Photos: Hip hop for muscular dystrophy – Sylvan Lake News

C.P. Blakely School students learned about muscular dystrophy today while also learning some sweet hip hop moves…

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Making My Bathroom Wheelchair-accessible – Muscular Dystrophy News

Renovating your home for wheelchair accessibility can seem like a daunting task. You would not be wrong….

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Call for ‘life-changing’ treatment to be approved in Scotland – The Scotsman

Patients with the most severe form of a genetic condition could lose the ability to move, breath…

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