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Muscular Dystrophy

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Interacting with Kids Who’ve Never Been Around a Wheelchair – Muscular Dystrophy News

People can be downright rude when it comes to being around someone who’s different to them. You…

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What it’s like to find out your 6-year-old has incurable muscular dystrophy – Cambridge News

The parents of a little boy with a terminal genetic disorder are determined to help him live…

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Learning to Embrace Relapse with Muscular Dystrophy – Muscular Dystrophy News

Just eight years ago, a four-hour trip to Disneyland would barely touch me. I’d go on a…

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Dating with a Disability (Part 1) – Muscular Dystrophy News

Part one of a series. Last summer, I was looking through some BioNews Services articles when I came…

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Young man with Duchenne Muscular Dystrophy shares story of hope – WLWT Cincinnati

Anyone who has battled an illness, or went through a tough time in their life knows how…

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Upgrading the toolbox for Duchenne muscular dystrophy research with a new rabbit model – Science Daily

Scientists rely on the use of animal models to improve our understanding of lethal muscle-wasting disease Duchenne…

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Firefighters honored for campaign to cure muscular dystrophy – WMC Action News 5

The Memphis Fire Department’s Fill the Boot campaign kicks off in a few weeks. Monday, the city was…

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Charity runner to take on London Marathon for muscular dystrophy – Scottish Daily Record

A charity runner is taking on his most gruelling challenge yet to once again raise money for…

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Muscular Dystrophy Won’t Eclipse the Blessings of Everyday Life – Muscular Dystrophy News

Chronic illness can dramatically alter life perspective. If there’s anything I’ve learned from having mitochondrial myopathy, it’s…

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Breaking the Stigma of Asking for Help – Muscular Dystrophy News

A lot of people think that asking for help is a piece of cake. A walk in…

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Muscular Dystrophy wants Spinraza to be made available on the NHS – The National

DRUG bosses must approve a “lifeline” drug for use on the NHS to stop patients losing the…

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Genetic Compensation Mechanism Could Aid in Treatment of Muscle Disorders, Study Suggests – Muscular Dystrophy News

A genetic compensation mechanism discovered in zebra fish could have implications in the treatment of muscle diseases,…

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Codicote villagers rally round to support five-year-old with genetic disease – Welwyn Hatfield Times

Fundraising challenges and events are all being staged to support five-year-old William Eames, who was diagnosed with…

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Photos: Hip hop for muscular dystrophy – Sylvan Lake News

C.P. Blakely School students learned about muscular dystrophy today while also learning some sweet hip hop moves…

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Making My Bathroom Wheelchair-accessible – Muscular Dystrophy News

Renovating your home for wheelchair accessibility can seem like a daunting task. You would not be wrong….

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Call for ‘life-changing’ treatment to be approved in Scotland – The Scotsman

Patients with the most severe form of a genetic condition could lose the ability to move, breath…

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Research team helping better understand causes of muscular dystrophy – Medical Xpress

Using fruit flies, Texas A&M AgriLife Research scientists may be one step closer to better understanding the…

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Fitbit Is Not Just for the Able-bodied – Muscular Dystrophy News

Fitbits aren’t just for able-bodied fitness gurus; they have many more features than just counting footsteps. As…

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Charity ball and half marathon raise £5k for Muscular Dystrophy UK – Maidenhead Advertiser

Almost £40,000 has been raised for charity by one family over the last 34 years. During the last…

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Summit Therapeutics launches placing to raise £15mln to advance its treatment for Duchenne Muscular Dystrophy – Proactive Investors UK

Summit Therapeutics PLC (LON:SUMM) (NASDAQ: SMMT) has raised around £15mln from an accelerated book-build placing of 8,333,333…

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Young boy with muscular dystrophy steals the nation’s hearts on special edition of The Jeremy Kyle Show – Mirror.co.uk

On today’s episode of The Jeremy Kyle Show, brave young people were celebrated for the way they…

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Tamoxifen and raloxifene slow down the progression of muscular dystrophy – Science Daily

Steroids are currently the only available treatment to reduce the repetitive cycles of inflammation and disease progression…

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Can Genome Editing Improve the Outlook for Muscular Dystrophy? – Medical News Bulletin

Researchers investigate genome editing using CRISPR/Cas9 as a way to correct mutations related to Duchenne muscular dystrophy. Duchenne…

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Human ‘chimeric’ cells restore crucial protein in Duchenne muscular dystrophy – University of Illinois at Chicago

Cells made by fusing a normal human muscle cell with a muscle cell from a person with…

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Brave boy with muscle-wasting disease is determined to achieve his dreams – Express.co.uk

Draven Jefferies has Duchenne muscular dystrophy which will soon confine him to a wheelchair and could claim…

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Travelling with a disability: Meet the voyager who’s re-writing the rule book – The Telegraph

Angus Drummond was working in London in investment banking when he received the news that changed his…

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Patients living longer with Duchenne muscular dystrophy pose new challenge for caregivers – Science Daily

Diagnostic and treatment advances are helping patients with Duchenne muscular dystrophy — one of nine major types…

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Artist with muscular dystrophy to sell his work – East London and West Essex Guardian Series

A young artist with Duchenne muscular dystrophy is hoping to sell several pieces of art with all…

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UP: Muscular Dystrophy patients stage hunger strike seeking Centre’s assistance for treatment – Business Standard

A mother-daughter duo suffering from Muscular Dystrophy embarked on a hunger strike demanding assistance from the Centre…

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What I Use to Prevent Neck Pain – Muscular Dystrophy News

I’ve had bad posture my entire life. Growing up, I didn’t know why I always slouched so…

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Havering teen with Muscular Dystrophy hoping to sell his ‘incredible’ artwork in support of Haven House Children’s Hospice – Yellow Advertising – Havering

A HAVERING teen with Muscular Dystrophy is hoping to sell his ’incredible’ artwork in support of Haven…

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This Small Molecule Protects the Muscles of Patients With Duchenne Muscular Dystrophy – Labiotech.eu

Summit Therapeutics’ treatment for the devastating disease, Duchenne muscular dystrophy, reduces inflammation, which could protect muscle fibers…

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How to Buy a Wheelchair-accessible Van – Muscular Dystrophy News

For the first couple years of having mitochondrial myopathy, I used a manual wheelchair to get around….

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Firefighters raise the roof for muscular dystrophy – Spruce Grove Examiner

If you’ve taken a drive down King Street over the last few days, you may have noticed…

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Growing Thicker Skin – Muscular Dystrophy News

It’s inevitable that people will treat you different when you’re in a wheelchair, whether that works in…

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A UK charity has urged Twitter to do more to stop abuse of disabled users – BT.com

A charity has urged Twitter to do more to help disabled users report hate speech against them…

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What Is Oculopharyngeal Muscular Dystrophy (OPMD)? – Muscular Dystrophy News

Oculopharyngeal muscular dystrophy (OPMD) is a genetic disease that is characterized by muscle wasting. As its name…

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Gene Therapy in Muscular Dystrophy – Muscular Dystrophy News

Gene therapy, the use of genetic material to treat a disease or disorder, is making strides in…

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Brave Leo inspires major muscular dystrophy fundraising drive – The Inverness Courier

BATTLING parents of a brave Inverness three-year-old are set to launch a fundraising drive towards research into…

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AI trial to help accelerate future treatments for Duchenne muscular dystrophy – Imperial College London

The Duchenne Research Fund has granted 320,000 pounds to Imperial experts, who hope to help doctors make…

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Correction of diverse muscular dystrophy mutations in human engineered heart muscle by single-site genome editing – Science Advances

Abstract Genome editing with CRISPR/Cas9 is a promising new approach for correcting or mitigating disease-causing mutations. Duchenne muscular…

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Brave Alec gets to make his own Lego movie – The Yorkshire Post

Alec Syphas suffers muscular dystrophy and wanted to make a Lego movie. Catherine Scott reports. An eight…

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Parents of Irish boy with Duchenne Muscular Dystrophy in race against time to secure life-changing medication – The Irish Sun

THE parents of a young boy with Duchenne Muscular Dystrophy face a race against time to secure…

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Stem cell therapy, a new hope to fight against Muscular Dystrophy & other Neurological Disorders – E-Pao.net

Nerul Navi Mumbai based, NeuroGen Brain and Spine Institute, which is India’s leading stem cell therapy cum…

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Scammers clear out terminally ill Antrim boy’s holiday fund – Belfast Telegraph

A dream holiday for a terminally ill little boy will go ahead – despite heartless scammers clearing…

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Disabled taxi price premium condemned by charity – BBC News

Confusion over new rules for disabled taxi passenger fares has led to “discriminatory” price differences, a charity…

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Teen with muscular dystrophy speaks out after travel struggles at Charlotte airport – WBTV

Lori Watkins and her 15-year-old son, Seph Ware, claim they have traveled from their home in Lynchburg,…

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£415 raised for Muscular Dystrophy UK – Cambrian News

Madam Following the closure of the Muscular Dystrophy shop on Bath Street, Aberystwyth, the volunteers have been busy fundraising. On Friday, 8 December, a very…

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Improved Outcomes in Duchenne Muscular Dystrophy With Long-Term Glucocorticoid Treatment – Neurology Advisor

Lifelong use of glucocorticoids is associated with physical strength and function improvements, greater health-related quality of life, and improved survival in patients with…

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Reprogrammed Stem Cells Regenerate Muscle In Muscular Dystrophy – ReliaWire

Human mesodermal induced pluripotent stem cell derived progenitors can successfully engraft into the skeletal muscle and hearts of dystrophic mice, researchers from Northwestern…

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