Brittle Bone Disease

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Five-year-old girl who has suffered 90 broken bones because of rare genetic condition bravely goes SURFING with her dad – and stuns parents when she emerges without a single fracture – Daily Mail

A five-year-old who has suffered 90 broken bones in her short lifetime due to a genetic disorder…

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Don’t call me ‘inspiring’ just because I’m in a wheelchair: Activist Samantha Renke reveals the word makes her ‘toes curl’ – because it implies being disabled is a ‘worst possible scenario’ – Daily Mail

An activist with a rare brittle bone disease has revealed why she hates being called an ‘inspiration’…

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Sisters with disability in China make a living by singing in live-stream videos – INQUIRER

Three sisters have garnered a huge following — 260,000 fans, to be exact — after finding their…

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‘We can’t walk but we can sing’: how three Chinese sisters with brittle bone disease carved a living for themselves – South China Morning Post

They cannot walk and have never been to school but three sisters in a rural part of…

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Brittle bone disease won’t stop this teen. How you can help her take the driver’s seat – Centre Daily Times

Dale Dyke’s bedroom is going through an awkward phase. Located just down the hall from the kitchen,…

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Bedale resident sets herself a year of challenges for Brittle Bone Society – Darlington and Stockton Times

A FORMER Bedale resident is helping a charity which has played a major part in her life…

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Record-breaking donation to Brittle Bone Society made by determined fundraiser – Basingstoke Gazette

THE record-breaking efforts of a fundraising dad will help further medical research into an incurable disease. Having set…

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9-year-old with brittle bone disease lights up with joy after getting tiny red Porsche and a Bruno Mars-themed birthday – Meaww

Little Benjamin Ganding’s ninth birthday turned into a heartwarming moment for those present, as the young boy’s…

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Vitamin D—a pseudo-vitamin for a pseudo-disease – Medical Xpress

We are still in love with vitamins a century after they were discovered, with half the US…

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Identical twins who missed two years of school while fighting chronic bone disease are going to university – Wales Online

It has been a long journey for identical twins Abigail and Rebecca Smith to get to their…

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This 3-year-old boy with brittle bone disease can’t stop smiling even after surgery – Yahoo News

Byron Baxter may be only 3, but the boy has quite the A-list group of “cyber aunts…

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Deaf pensioner afraid to leave home now walking with confidence thanks to hi-tech bunnet – Scottish Daily Record

A deaf pensioner ­struggling to go out alone in case he wanders into the path of a…

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Brittle bone disease: Young adults could soon be screened DECADES before symptoms appear – Express.co.uk

A device has been developed that identifies 899 tiny bits of DNA linked with the devastating condition…

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Broken bones could heal better, faster thanks to Shriners Hospital discovery – CTV News

A team at Shriners Hospital for Children in Montreal has made a discovery that could lead to…

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Disability campaigner Samantha Renke reveals she’d consider having a designer baby to avoid passing on the ‘extremely painful’ brittle bone disease that has confined her to a wheelchair – Daily Mail

The disabled actress Samantha Renke has said she would consider having a designer baby when she starts…

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TENNIS: Jordanne Whiley sets sights on comeback after pregnancy – Oxford Mail

JORDANNE Whiley is enjoying every minute of motherhood but admits she cannot wait to be back on…

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Royal visit to mark Bath charity Designability’s 50 years – Somerset Live

A Bath charity is set to showcase 50 years of its work this week when Prince Edward…

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What is Osteogenesis Imperfecta and what are the symptoms of Samantha Renke’s type of brittle bone disease? – The Sun

OSTEOGENESIS Imperfecta is a genetic condition that is present from birth. But what are the symptoms and how…

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Wish come true: 11-year-old celebrates birthday in Disney – News Courier

For the last 38 years, the Make-A-Wish Foundation has granted wishes to children with life-threatening conditions like…

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Disabled musician seeks to break norms in the music industry – Citizen

The positive and confident Thabo Mashaba wants to inspire other people living with disabilities and give them…

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Actor Samantha Renke Slams Zara After Staff Refused To Help Her Reach Card Machine – HuffPost UK

The actor Samantha Renke has slammed Zara for not educating its staff on how to assist disabled…

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Pupils raise funds for Lizzie Williams’ Paralympic journey – West Sussex County Times

Arunside Primary School in Horsham welcomed local paralympic athlete, Lizzie Williams, to the school. Lizzie is a…

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North Devon charity gives severely ill and disabled youngsters trip of a lifetime – Devon Live

Children with serious illness or major disabilities have had a trip of a lifetime in the USA…

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Mom, son with disabilities face daunting challenge of fleeing advancing lava – Hawaii News Now

The Big Island is working with a nonprofit to move 11 tiny, temporary structures onto a 14-acre…

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Meet this Kerala girl who battles brittle bone disease inspiring others – The New Indian Express

Latheesha Ansari is 2 feet tall and weighs only 14 kg, but that does not mean she…

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Could a drug designed for brittle bone disease provide a miracle cure for bald men? Scientists discover it can help hair grow 2mm in just 6 DAYS – Daily Mail

A drug designed for brittle bone disease has provided hopes of a cure for men with male…

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New Jersey Boy With Brittle Bone Disease Surprised With Music Studio After Viral Eminem Cover – NBC New York

A New Jersey teenager who has wowed the world with his musical talent — including a viral…

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How long should a severely disabled child have to wait for a wheelchair in Ireland? – The Irish Times

In January, the Irish Government committed to formally ratifying the UN Convention on the Rights of…

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The ‘china doll’ boy: Six-year-old, who has broken his bones more than 500 times, suffers fractures even hugging his siblings or smiling at his mother – Daily Mail

A ‘china doll’ boy has suffered more than 500 fractures in his short life. Reiko Quinlan, six, from…

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Brittle Bone Society fundraiser led by father whose son has the condition – Basingstoke Gazette

FROM Basingstoke to Manchester with a bone in hand, runners raised more than £2,000 for charity. As part…

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A spirit that refuses to break: Krishnapriya does not let brittle bones beat her dreams – Manorama Online

“What good is it studying any further? I am going to stop going to school, doctor.”; Lakshmi…

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Steven Edney’s 12 challenges in 12 months effort for Brittle Bone Society – Basingstoke Gazette

AFTER his son was diagnosed with a rare condition which affects just one in 15,000 people, Steven…

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The little girl who lives like a porcelain doll: Mother of five-year-old who has rare disease that causes brittle bones admits she lives in constant fear that her brave daughter ‘is going to break’ – Daily Mail

A mom says her five-year-old daughter is like a ‘porcelain doll’ because her bones are so fragile…

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Five-year-old girl suffers from brittle bone disease in Pennsylvania – Daily Mail

Five-year-old girl Sabrina Lewis has osteogenesis imperfecta and has dwarfism is so fragile that her mom, Michaela…

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The 17-month-old boy dubbed a ‘China doll’ because he broke a rib while in the womb and can break a bone just by SNEEZING – Daily Mail

An infant has been dubbed a ‘real life China doll’ because he is so fragile that he…

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YouTube channel Real Stories gets 1 million daily YouTube views – Digiday

Digital content studio and broadcaster Little Dot Studios started by making TV content work on YouTube. Now,…

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Workshop gives special-needs children a chance to dance with real-life ballerinas – ABC News

Sarai Arce loves to dance. The 6-year-old loves the poses. Dancing, she said, makes her “happy.” When Sarai…

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6-Year-Old Girl with Brittle Bone Disease Finds Herself in Special Dance Class – Inside Edition

Sarai Arce suffered six fractures at the time of her birth and a skull fracture when she…

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TENNIS: Pregnant Jordanne Whiley eyes November return and sets Tokyo 2020 goal – Oxford Mail

OXFORDSHIRE’S newest sporting star has set a date for her comeback as she awaits the birth of…

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6-Year-Old With Brittle Bone Disease Learns Ballet, Thanks to a Special Needs Dance Class – NBC4i.com

A 6-year-old with a brittle bone disease is a ballerina, thanks to a special dance class. “I like…

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New rock group seeks to raise understanding of rare disease sufferers – Global Times

An original new rock band has become the voice of people who suffer rare diseases, using music to call for understanding and respect…

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Access to Work claimant says Government thinks disabled people cost too much – Care Appointments

Disabled people are seen as a burden on society “because the Government thinks we cost too much money”, an Access to Work claimant…

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New brittle bone test to end hip break agony for thousands – Express.co.uk

A REVOLUTIONARY new screening test for brittle bone disease could prevent thousands of women suffering the agony of hip fractures each year. The simple…

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Disabled people explain why they’re furious Philip Hammond blames them for slow economy – iNews

Disability rights campaigner Shani Dhanda has called for Chancellor Philip Hammond to be sacked over “shameful” comments blaming disabled people for the UK’s…

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Woman who applied for 100 jobs finally got interview after hiding her disability – The Independent

Many people are worried about telling their employer about a disability, research has revealed, and one woman who applied for hundreds of jobs…

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Pop superstar Olly Murs helps to grant wishes to seriously ill children for Christmas – Manchester Evening News

Olly Murs Helps Grant wishes to seriously ill Children Pop star Olly Murs brought smiles to the faces of eight seriously ill children at…

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National Child Day: McGill Nursing research helping to improve quality of life of children with brittle bone disease – McGill Reporter

National Child Day falls on November 20 each year in Canada, to commemorate the United Nations’ Convention on the Rights of the Child,…

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500 broken bones doesn’t slow down this talented wildlife artist – WGNO

Katherine Klimitas was diagnosed with brittle bone disease just two weeks before being born. Brittle bone disease, or osteogenesis imperfecta, is a disorder that…

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Physio assistant uses her own experience to highlight brittle bone disease to researchers – Chartered Society of Physiotherapy

Charlotte Proud was born with brittle bone disease. But, she told a recent conference on rare diseases, that has not stopped her holding…

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Air pollution exposure linked to brittle bone disease – Daily Mail Online

Air pollution could cause brittle bone disease, according to new research. A study by Columbia University’s Mailman School of Public Health that analyzed data…

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