Ataxia

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Answering the Questions Friends Ask Most Often About My Friedreich’s Ataxia – Friedreich’s Ataxia News

Over the past couple of weeks, I’ve had some good conversations with FAers and others about life….

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I Apologize for Going Dark – Friedreich’s Ataxia News

Do you ever experience times when being social in any form is out of the question? When…

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Finding Reasons to Stay Alive – Friedreich’s Ataxia News

Drowsily and with great effort, I hoisted the top half of my body upright in the hotel…

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My Journey to a Friedreich’s Ataxia Diagnosis, Part 3 – Friedreich’s Ataxia News

Third and final in a series. In a previous column, I discussed the tests I underwent to…

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A Physical Therapist Shares Her Perspective on Working with FA Patients – Friedreich’s Ataxia News

I have been working with my physical therapist, Kelli, for a year and a half. She is…

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Answering the Questions Friends Ask Most Often About My Friedreich’s Ataxia – Friedreich’s Ataxia News

Over the past couple of weeks, I’ve had some good conversations with FAers and others about life….

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4 Tips for Preparing to Attend a Football Game – Friedreich’s Ataxia News

Navigating huge crowds at major events can cause great anxiety. For example, going to an arena concert…

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10 Lessons I’ve Learned from Having FA – Friedreich’s Ataxia News

It’s funny how cliches about life have started to make sense to me. From my observations of…

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Don’t Let Fear of Missing Out Spoil Your Trip – Friedreich’s Ataxia News

My husband Justin and I returned last week from our honeymoon in the Bahamas following our beautiful…

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Vibration Device Fails to Halt Motor Deterioration in Children with Friedreich’s Ataxia, Small Study Shows – Friedreich’s Ataxia News

Muscle stimulation through focal vibrations produced by a specialized device may prevent further deterioration of motor function…

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The Caribbean Was the Perfect Spot to Set Aside My Fierce Independence – Friedreich’s Ataxia News

“Are you OK up here?” my stepdad asked, coming upstairs from the galley. “Yeah, I’m fine,” I said,…

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Serious Games Can Be Used to Assess Motor Function in Advanced FA Patients, Study Shows – Friedreich’s Ataxia News

Serious games (SG) — video games designed with a primary purpose other than pure entertainment — are…

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6 Tips to Prepare for rideATAXIA, the Big Bike Ride – Friedreich’s Ataxia News

Sweaty palms, excitement, hope, and motivation — I’m preparing to be in position at the starting line…

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New to Friedreich’s Ataxia? Some Advice for the Newly Diagnosed – Friedreich’s Ataxia News

The first time I ever heard of Friedreich’s ataxia was the day I was diagnosed with the…

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A Letter to My Endlessly Loving Mother – Friedreich’s Ataxia News

Dearest Mom, I wrote this a long time ago, but I wanted to wait for a random day…

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I’m Not Yet Sure How to Fight My Fatigue – Friedreich’s Ataxia News

Friedreich’s ataxia causes a wide array of symptoms. Every FA patient experiences the disease differently. For me,…

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In Case of Emergency, Don’t Have a Disability – Friedreich’s Ataxia News

It wasn’t until a fire alarm at my hotel this past weekend that I realized the complete…

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Daydreaming and Other Ways of Coping – Friedreich’s Ataxia News

“Matt?” my professor repeated for who knows how many times, interrupting the imaginary concert in my head. I…

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Don’t Judge Yourself for Needing Help – Friedreich’s Ataxia News

The three-day Labor Day weekend often means relaxing and spending time with people you may not often…

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Comprehensive MRI-based Study Reveals Brain Changes Linked to Friedreich’s Ataxia – Friedreich’s Ataxia News

A comprehensive evaluation of the brain with magnetic resonance imaging (MRI)-based methods and clinical features of Friedreich’s…

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Seasons of Life with Friedreich’s Ataxia – Friedreich’s Ataxia News

Since my 2013 Friedreich’s ataxia diagnosis, the condition has consumed a part of every day. I was…

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‘Members are doing it for themselves’ in new Ataxia charity after controversial closure – Independent.ie

The man behind a new charity after the closure of controversial Ataxia Ireland has slammed “career CEOs”…

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The Emotional Workout of Physical Therapy – Friedreich’s Ataxia News

In Friedreich’s ataxia (FA) care, we don’t really have treatment options. There are clinical trials taking place…

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Tips for Traveling with Friedreich’s Ataxia – Friedreich’s Ataxia News

When you plan a destination or a weekend getaway, it is wise to make travel and transportation…

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I’m Still Pedaling to Keep My Oath – Friedreich’s Ataxia News

I gritted my teeth. The August sun in south Louisiana pounded unrelentingly onto my head. Drops of…

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Electrical Stimulation Helps Ataxia Symptoms – MedPage Today

Direct current electrical stimulation to the brain and spinal cord appeared effective in treating symptoms of neurodegenerative…

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An Introduction to a ‘Practical Guide to Life with FA’ – Friedreich’s Ataxia News

My name is Christina Logan, and doctors diagnosed me with the rare neuromuscular disorder Friedreich’s ataxia at…

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Hitchin theatre to host star-studded UK premiere of film The Ataxian – The Comet

The UK premiere of The Ataxian, about a long-distance cyclist with Friedreich’s ataxia, is to be held…

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The Day I Began Tracking My ‘Little Victories’ – Friedreich’s Ataxia News

In an instant, my plans and dreams vanished; I was left wandering through life with no set…

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Aussie plant scientists’ discovery points to treatments for major genetic disorder – Xinhua

Australian plant scientists on Friday said they have discovered a new molecular mechanism in genes, a…

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A place at The Open for young golfer who overcame cerebral palsy – The Telegraph

hen Ash Turner developed a rare form of cerebral palsy after a freak childhood accident his parents…

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Britain’s strongest disabled man shares his 17-year battle with ‘invisible disease’ Ataxia – SWNS Stories

These pictures show Britain’s strongest disabled man – who holds the record for lifting stones heavier than…

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Friedreich’s Ataxia Patients Have Altered Connectivity Between Brain Regions, Study Shows – Friedreich’s Ataxia News

People with Friedreich’s ataxia (FA) have alterations in the connectivity of different brain regions, which most likely…

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It’s OK to Be Honest About Your Emotions – Friedreich’s Ataxia News

Last month was Mental Health Awareness Month, so I thought this might be a good time to…

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Cancer Treatment May Be Able to Prevent Heart Problems in Friedreich’s Ataxia, Study Suggests – Friedreich’s Ataxia News

A therapy already approved to treat cancer could potentially be used to prevent heart abnormalities in Friedreich’s…

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For Father’s Day, this Indianapolis dad just wants a cure for his daughter – Indianapolis Star

Virgil Harris would do anything for his daughter, his baby. Doesn’t matter that she’s not a baby…

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Friedreich Ataxia Drug Market Insights June 2018 covering Market Share, Market Concentration Rate, Mergers and Acquisition, Expansion, Gross Margin, Leading Players, Raw materials, Substitutes threat and Innovation – satPRnews

A new report titled Global Friedreich Ataxia Drug Market Professional Survey Report 2018 has been added to…

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In FA Case Study, Baclofen Administered in Spinal Canal Resolved Severe Muscle Spasms – Friedreich’s Ataxia News

Painful muscle spasms in a patient with Friedreich’s ataxia (FA) were managed by administering baclofen in the…

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Gene Therapy Fully Reverses Friedreich’s Ataxia Changes in Mouse Model, Study Shows – Friedreich’s Ataxia News

A gene therapy approach to deliver frataxin, the protein that’s deficient in Friedreich’s ataxia (FA) patients, was…

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Endoplasmic Reticulum Stress Could Be Treatment Target for Friedreich’s Ataxia, Study Suggests – Friedreich’s Ataxia News

Endoplasmic reticulum stress due to loss of frataxin protein plays a major role in the development of…

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Ataxia charity to close after ‘losing trust’ – Independent.ie

Charity Ataxia Ireland is set to be closed with its functions transferred to another body. The board of…

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Why Glenn McCrory is setting out on a new challenge in memory of someone truly special – Chronicle Live

Tyneside boxing champ Glenn McCrory is ready to scale new heights – in memory of his tragic…

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Could stem cell therapy be an effective treatment for Friedreich’s ataxia? – University of Bristol

Researchers at the University of Bristol are looking for people with an inherited neurological condition called Friedreich’s…

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Fight or Flight in FA Patients – Friedreich’s Ataxia News

Almost everyone can point to moments in their lives dictated by the choice: fight or flight. By…

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Investigational Friedreich’s Ataxia Therapy RT001 Found to Be Safe, Well-Tolerated in Early Trial – Friedreich’s Ataxia News

Results from a Phase 1/2 clinical study support the safety and tolerability of RT001, an investigational therapy…

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Mobility Devices Linked to Worse Quality of Life in Pediatric FA Patients, Study Suggests – Friedreich’s Ataxia News

Researchers found that the use of mobility devices is associated with a poorer quality of life in…

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Man from Weston-super-Mare to host variety show fundraiser for ataxia after watching niece battle the degenerative disease – Somerset Live

A man from Weston-super-Mare is hosting a variety show fundraiser at the Grand Pier in May to…

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Please Don’t Refer to My Caregivers As ‘Slaves’ – Friedreich’s Ataxia News

When I was a little girl, I used to have this recurring fantasy every so often in…

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Study Describes Pitfalls of FA Genetic Tests, Possible Need for More Analysis – Friedreich’s Ataxia News

Researchers report that genetic tests for Friedreich’s ataxia (FA) are complex and may require additional screening in…

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DNA Repair Protein Could Be Key to Understanding FA Progression, Study Suggests – Friedreich’s Ataxia News

Using human cells, researchers have found that targeting the MLH3 protein involved in DNA repair can reduce…

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